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HomeAbout Prognosis and impactsIncidence and risk factorsSymptomsCauses and effectsDiagnosis and evaluation Management and treatment CopingStrategies for copingAsking for helpWork Family and friendsAdaptive aidsStress Resources ResearchConclusion

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Soft Tissue Masses: Diagnosis and Surgery for Benign and Cancerous Tumors (Sarcoma)

Last updated Friday, January 18, 2008

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Coping

Strategies for coping

A sarcoma’s ability to go undetected in the body is troublesome, even after the growth is discovered. Initially, the patient might struggle with not knowing whether a soft tissue tumor is cancerous or benign. After surgery, a patient might feel emotionally exhausted from worry about whether to anticipate recurrence of such a tumor.

A patient might take comfort in knowing that three of every four soft tissue masses discovered are benign. Nevertheless, a majority of patients express fear and anxiety with the recognition of such masses.

Patients who experience great anxiety in learning of a cancerous tumor, or learning of a benign tumor in a dangerous location in the body, might seek help from family, friends, a mental health professional, a hospital’s pastoral care group, or through nontraditional therapies such as reiki.

Asking for help

Cancer patients and their families should learn as much as they can about the disease. Sometimes talking with a family member or friend can provide much needed emotional support. Working with a counselor, psychologist, or social worker helps some people with cancer to develop better coping skills.

Support groups have been a source of help for thousands of cancer patients.

Sarcoma Alliance, Sarcoma Foundation of America, and Northwest Sarcoma Foundation are a few of the several organizations that offer support networks for patients coping with cancerous soft tissue masses.

Work

Most people with a soft-tissue tumor can continue to work. Doctors and work supervisors should be able to help people make any needed changes to relieve discomfort. This could include adjusting a work area or reducing the amount of time spent doing particular tasks. An occupation therapist can help find ways to modify activities or suggest tool modifications.

Family and friends

Children may feel angry, sad or self-conscious about having a tumor. Acceptance and settling into a routine will benefit everyone in the family.

When parents are first told that their child has cancer, for example, they might feel shocked, numbed, or disbelieving. They might also feel guilty, and ask themselves if something they did or didn't do caused their child's condition.

The child with a tumor may feel "hurt" by an illness that isn't their fault, blame parents for the illness, adopt a "why me?" attitude, engage in self-pity or become angry. They may resent other children who are well, including brothers and sisters.

Other children might feel left out and resentful because of the amount of time and attention the child with cancer requires. Or they may feel guilty, as if their normal "bad thoughts" towards their brother or sister had somehow caused the illness.

Children might over-identify with the brother or sister with special needs. Some feel a pressure to achieve or make up for what their brother or sister can no longer do. Others want to involve themselves in care-giving – to the point where they give up their own normal activities. In these cases, try to help siblings find other ways to deal with their feelings. Whenever possible, brothers and sisters should be allowed to settle their own differences. Siblings should be encouraged to talk with peers who live in homes with similar concerns. The key to dealing with all these emotions is to talk about them with one another.

Children should be encouraged to learn as much as they can about cancer and their treatment program. Older children can be responsible for taking medications on time, reporting any medication side effects to you, and following an exercise program. This may help prepare them for the change to adult health-care.

Children with cancer should not be overprotected. They might become too dependent if their parents do everything for them or if the parents keep them from tasks they are capable of doing. Parents should not be manipulated into allowing activities that shouldn't be done, but should compromise when possible. Consistency will help children learn what is expected.

Parents should plan special time to spend alone with their spouse, or with the entire family. When their child first becomes ill, they may set aside relationships with other family members. It is important, however, to continue to talk and spend time with all family members.

Adaptive aids

Patients for whom safe removal of sarcoma (cancerous growth) left them less mobile might find aid in crutches, braces, a cane, or a walker – or if a leg was amputated, in prostheses. A wheelchair may be necessary short-term if walking ability has been affected or for elderly patients who have difficulty walking. Wheelchairs may be required by some people. Special reaching devices are available to ensure that patients can reach whatever they need.

Stress

Support from family, friends, or a support group often helps patients cope with stress related to a soft tissue tumor. Sarcoma (cancerous growth) patients often find it helpful to speak to other individuals who have been through treatment for this rare diagnosis. Sarcoma Alliance, Sarcoma Foundation of America, and Northwest Sarcoma Foundation are among the organizations that can put patients in touch with other sarcoma survivors.

Resources

Cancer Lifeline in Seattle

The Sarcoma Alliance

The Northwest Sarcoma Foundation

The Sarcoma Foundation of America

Surgery for masses at the University of Washington

If you are interested in making an appointment to discuss this procedure, you can request an appointment using our online referrals website. To request a referral online, please click here. You can also call 206-598-4288 (outside the Seattle area: 800-440-3280) to make an appointment.


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