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Last updated Thursday, December 23, 2004
Incidence
It is estimated that about one in 10,000 people has Marfan syndrome. This means it affects over 20,000 people in the United States alone. Early diagnosis and treatment allows most individuals to live relatively normal, fulfilling lives, and may prevent more serious problems. People who have Marfan syndrome in their family should meet with their doctors, genetic counselors, the National Marfan Foundation, and others who have Marfan syndrome to learn all they can about the disorder and how to manage it effectively.
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