Marfan Syndrome.
Last updated Thursday, December 23, 2004
Prognosis and impactsIs marfan syndrome curable? Marfan syndrome is a genetic disease for which there is currently no
cure. However, the manifestations of the disease can be managed.
Will marfan syndrome change the patient?s ability to have children or get pregnant? Childbearing puts extra strain on the heart. Therefore, women with Marfan syndrome should discuss pregnancy and delivery with their doctors.Will marfan syndrome alter activities of daily living (e.g. work, sports, housework, etc.)? For people with Marfan syndrome, active sports such as track,
basketball, baseball, volleyball, and football, and strenuous
activities such as heavy lifting should be avoided because they cause
additional heart strain. Since the syndrome may go undiagnosed until
adulthood, parents who have Marfan syndrome should have their children
checked for signs of the syndrome before allowing them to enter
competitive sports or vigorous exercise programs. Ask your doctor which
activities are safe for you and your children.What other impacts might marfan syndrome have on the patient's life? Is it contagious, disfiguring, etc.? Since infections develop easily on defective heart valves,
antibiotics are usually given before and after any surgery, tooth
extractions, and even after routine dental care.
Adults and children with Marfan syndrome should consider wearing a
medic alert bracelet, as this information will help doctors provide
appropriate care in case of an emergency. Bracelets can be ordered from
most pharmacies or by calling 1-800-ID-ALERT.
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