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Marfan Syndrome.

Last updated Thursday, December 23, 2004

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Prognosis and impacts

Curability

Marfan syndrome is a genetic disease for which there is currently no cure. However, the manifestations of the disease can be managed.

Fertility and pregnancy

Childbearing puts extra strain on the heart. Therefore, women with Marfan syndrome should discuss pregnancy and delivery with their doctors.

Daily activities

For people with Marfan syndrome, active sports such as track, basketball, baseball, volleyball, and football, and strenuous activities such as heavy lifting should be avoided because they cause additional heart strain. Since the syndrome may go undiagnosed until adulthood, parents who have Marfan syndrome should have their children checked for signs of the syndrome before allowing them to enter competitive sports or vigorous exercise programs. Ask your doctor which activities are safe for you and your children.

Other impacts

Since infections develop easily on defective heart valves, antibiotics are usually given before and after any surgery, tooth extractions, and even after routine dental care.

Adults and children with Marfan syndrome should consider wearing a medic alert bracelet, as this information will help doctors provide appropriate care in case of an emergency. Bracelets can be ordered from most pharmacies or by calling 1-800-ID-ALERT.


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