Lupus Erythematosus.

Coping

What are some strategies for coping with lupus erythematosus?

There's no question that social and emotional problems often come with having a chronic disease.

However, not everyone experiences them to the same degree, and there can be long periods of time when you aren't bothered at all by the disease.

There may also be times when you feel angry and depressed over the loss of your former good health. You may be in pain, and there may be changes in your appearance. None of these things are easy to accept.

Talking about your fears, anger and depression usually helps. At times it may be hard to confide in family or friends or in your doctor. The chance to talk about problems and frustrations with others who have lupus can be just what you need to improve your spirits, and it can help you to find solutions to your problems too. It is important to remember, though, that you may never experience some of the problems you learn about in others with lupus. In some areas, people who have lupus have formed clubs or support groups. The groups are an effort by these people to help themselves through a better understanding of their disease.

Most support groups have regular meetings and often a medical specialist is invited to give a talk. A very important aspect of these groups is the opportunity to share experiences with others who have lupus. Meetings give everyone a chance to express their feelings, and to learn from listening about how others cope. Many practical tips about daily activities are also exchanged. Family members also have a lot to gain from such sessions. If they can understand your problems and your feelings better, they can be more sympathetic and helpful.

There may be times when you feel overwhelmed. At such times counseling may be helpful. Your doctor or the Lupus Foundation of America can give you suggestions about social workers and other professionals and agencies who may be able to offer their support.

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