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Frequently Asked Questions about Living with Arthritis.

Last updated Tuesday, January 04, 2005

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Making life changes

Should a person with arthritis make life changes?

If you have arthritis, you may want or need to make some changes in your life.

Changes may be as minor as buying a more comfortable chair or an electric can opener. Or you may need to make some changes in your work, your social life, the type of sports you enjoy, or the way you manage your home. And you may have to keep making changes as the needs arise.

Everyone experiences change as they go through life. Changes can be frustrating, scary, or challenging. This section provides ideas for managing your life and coping with the changes arthritis may bring about.

How can a person with arthritis find help in making life changes?

Resources are available if you or your family would like help in learning to live with arthritis.

The first person to consult is your doctor. Doctors can provide feedback about information you've been told or read regarding arthritis treatment and unproven remedies. Doctors who specialize in arthritis are particularly aware of the importance of the role of other health professionals in the overall treatment of arthritis. For instance, if you have difficulty doing daily activities, you may be referred to an occupational therapist. These specialists can teach you about joint protection techniques and can assist you with self-help aids and methods to make activities easier.

A physical therapist can design exercise programs to help prevent and correct joint problems and to maintain general strength. He or she can suggest techniques to lessen pain, such as special applications of heat and cold.

Psychologists, social workers, and psychiatrists are available to help you with emotional concerns. In addition, mental health professionals who specialize in sexual counseling, pain management, and marriage and family therapy are available in most communities.

If you have other concerns, a variety of people and agencies in the community can help. Community resources include nurses, vocational rehabilitation counselors, members of the clergy, transportation services, meal delivery programs, visiting health professionals, homemaker services, and financial and legal aid.

How can a person with arthritis set goals for making life changes?

Once you know what needs and resources you have, then you can start setting goals for yourself. Have you ever done this? Many people rush through life without taking the time to simply sit back and evaluate their choices and actions. Are you spending your time and energy on something worthwhile, something that you really want to do? For some people, arthritis has turned out to be an opportunity to stop and evaluate their goals in life. What do you want to achieve? Don't let society or physical limitations dictate what your goals should be. On the other hand, be practical about what's possible. Break down big, long-term goals into small, manageable steps that can be accomplished in short amounts of time.

The strategy of contracting is especially helpful in achieving short-term goals. Essentially, contracting consists of the following steps:

  • Identify something you want to do.
  • Be realistic.
  • Specify what, when, how many, or how much.
  • Write it down.
  • Check it daily.

For example, a contract might be: "This week I'll walk 15 minutes before lunch on four days."

Your choice of goals doesn't have to be final, and you can always change your mind as you learn more about arthritis and how it affects you. Concern yourself with coping well today, not with what might happen tomorrow.

How can a person with arthritis be realistic about making life changes?

Each of us has limitations. Those who lead full, active lives learn how to work around their limitations and maximize their strengths. Take stock of your arthritis and any limits it has caused. How mobile are you? How much energy do you have, and how dependable is your level of energy? Do you have any problem joints that make certain activities harder to do? It would be nice to ignore the arthritis and do whatever you want, but eventually you may make matters worse by not saving your energy and using your joints wisely.

Perhaps you feel confused about what your actual limits are. Your doctor or therapist may be able to provide some guidelines about rest periods and activities. Then you will have to experiment. By trial and error, you can learn what your body will tolerate. Remember that you may be able to build up your tolerance for certain activities. A physical therapist can help you set up an exercise program that can help you develop your strength and joint mobility.

You may find that you can no longer do certain activities or do them as well. If so, don't dwell on your limitations; instead, look at your capabilities. One way of doing this is by engaging in the practice of positive self-talk. Self-talk can best be described as those habitual things we say to ourselves. Negative self-talk can lead to increased pain and depression and to decreased activity levels ("I just can't do the things I used to do, so why bother"). Positive self-talk, on the other hand, can help you better cope with a situation ("I'm getting better and better able to do some things. My exercises are really helping me").

Everyone has talents and abilities that can be developed. You're limited only by your imagination. Find new ways to use your skills. For example, if you no longer can compete in sports, you might try coaching instead. Look for ways to modify activities so you still can do them. If you love to garden but no longer can stoop or kneel, see if you can get raised flower beds constructed. If knitting was your passion but arthritis now affects your hands, talk to an occupational therapist to get ideas about aids or techniques to make knitting possible or suggestions about other hobbies you might enjoy. If you are having difficulties at your job, a vocational counselor can help you modify your work setting or suggest other possible careers.

It's human nature to get upset if you try something that doesn't seem to work out. But use that experience to your advantage. Consider any failure you have to be a learning experience-just part of the process toward success.

How can a person with arthritis help manage their own health care?

Even when people have arthritis, there still are many ways of taking care to stay healthy. In addition to arthritis treatment, you need to consider such things as being at a healthy weight level, limiting alcohol consumption, not smoking, exercising daily within your physical limitations, eating a balanced and nutritionally sound diet, and managing stress.

Besides physical health, you need to be concerned about your emotional health. The status of your emotional health is based on a variety of factors. How well do you communicate? How do you handle anger, guilt, worry, and fear? How good is your self-image? How are you managing your personal relationships? You'll need to address these questions on an individual basis. Some people find that they are better able to resolve such issues by seeking professional assistance.

Scientists are not yet sure what role emotions might play in the development and course of arthritis. But people with the disease say that they feel better when they have learned more effective ways of coping with the stress in their lives.

You can become a very important partner in your own health care by creating a satisfying and fulfilling lifestyle, by caring for your total health, and by understanding that it's normal to experience emotional ups and downs throughout life. In fact, overcoming stressful situations often helps us grow and become better equipped to deal with other life challenges.


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